AIFA Newsletter - February 2016
Many pieces of the allergy puzzle are missing and AIFA aims to fill the gaps in our knowledge of immune disease.
Go to the AIFA Grants page www.allergyimmunology.org.au/grants if you are an early career researcher in the field of allergic diseases, immunodeficiencies and other immune diseases and have a project that needs funding.
Complete an Expression of Interest form for a grant of up to $10,000 and email it to email@example.com by 17th June 2016.
AIFA is fortunate to have a bold new fundraiser. Michael Fries suffered from multiple allergies as a child. Now he is preparing to undertake a significant mental and physical challenge to raise funds for AIFA.
Michael will be riding from Melbourne to Sydney in 12 days, covering a distance of approximately 1030km.
His journey will commence at Federation Square on March 20th and will finish in the heart of Sydney on March 31st. He is raising money on an innovative new app that brings giving into the 21st century. See www.givercharityapp.com
When Michael was six months old, he was diagnosed with allergies to egg, dairy, specific nuts, some meats, animal fur and dust mites. He experienced a few close calls which were life-threatening.
Fortunately, regular monitoring and treatment has enabled him to grow out of some of his allergies although asthma is still a present but manageable part of his life. When Michael attended his allergy and immunology clinic, he became aware of other children whose lives were severely compromised with allergies and they were dealing with obstacles he had never had to encounter. Now he is doing something to help them.
Michael Fries will fundraise for AIFA on the new Giver app. AIFA is pleased to be in partnership with GiverAus which has created an app designed to bring the act of donating into the 21st century.
Giver enables people to donate just 10 cents a day ($3 a month) to our cause. By encouraging family members and friends to join the Giver community you can enable them to inspire hope, create opportunities, transform lives and shape the future. They can support AIFA anytime, anywhere, with ease and efficiency. Through Giver and AIFA they can change someone’s world with the click of a button. Encourage your friends and family to make a difference today by downloading the app, supporting AIFA, liking and sharing GiverAUS on Facebook and visiting their website. www.givercharityapp.com
Join Giver and change the world for 10 cents a day
Dorotea was diagnosed with Food Protein Induced Enterocolitis Syndrome (FPIES) at 4 months of age. This year research funding from AIFA is targeted at finding out more about this condition to help children like her. See www.allergyimmunology.org.au/projects
"To say that having a child with FPIES is stressful is an understatement," Dorotea's mother Amanda writes. "Getting help for these children is very difficult as the condition is rare and even many paediatricians are inexperienced in the management of it. Dorotea's first admission to hospital was after a severe reaction to soy formula. As is often the case, it was misdiagnosed as a viral gastroenteritis.
The main symptom of FPIES is profuse vomiting, which can be accompanied by pallor, floppiness, hypotension and hypothermia. The FPIES reactions may be triggered by a variety of foods, although the most common triggers in Australia are staple foods such as cow’s milk, rice/oats, soy and eggs.
Amanda explains that "the diagnosis of FPIES is just the beginning of what is often an incredibly exhausting few years. Because there is no testing available to ascertain what foods are safe, each new food needs to be trialled separately. We long to see this condition better understood so that families do not have to live with the exhaustion and uncertainty that marks our weeks."
Read the full story at: www.allergyimmunology.org.au/news/70-dorotea-s-story
How about being an allergy ambassador in your school? ASCIA has long recognised the need for food allergy education and has produced a presentation of slides to improve understanding of allergy. This provides clear information to help support students with allergies and can be used as a powerful tool for teachers and students alike.
Download the free slides at www.allergyimmunology.org.au/support-aifa/support-resources under heading "Are You Allergy Aware?"
As well as building awareness, you can take action by fundraising for research to find better treatments and cures for allergy and immune diseases. Together we can find out why allergy is increasing and what we can do about it. There are a lot of questions in the community about allergy and we need medical research to help find some answers.
For fundraising ideas www.allergyimmunology.org.au/support-aifa/fundraising
You can also set up a great fundraising page on www.gofundraise.com.au to create an event, set a target, and receive messages of support. Leaflets and background information can be found under Support Resources on the AIFA home page www.allergyimmunology.org.au or email firstname.lastname@example.org for help.
We can empathise with the impact of complex autoimmune diseases when we hear personal stories. The Autoimmune Resource and Research Centre based in Newcastle provide support and education for people with autoimmune disease and have collated a page of these stories on their website http://www.autoimmune.org.au/life-stories/.aspx
People with an autoimmune disease often feel isolated and misunderstood but there are Café Conversations run by volunteers in regional towns as well major capital cities. The next meeting is being held in Maitland on 3rd March@11am RSVP email@example.com
AIFA is privileged to have a national Grant Selection Panel that brings together eight of Australia's experts in immunology with world leading clinical and research experience. Our grant applications for funding are received from national teams from Australia and New Zealand's finest research institutions and universities. AIFA encourages young researchers who do not get recognition through major government grants. AIFA is not government funded and relies of donations from individuals or commercial organisations.
If you want to fundraise to target research into a particular autoimmune disease such as Lupus, email firstname.lastname@example.org.
If you are passionate about making a difference to the health of people living with allergy and other immune diseases through medical research, we would like to hear from you. Be a part of building a new and exciting charity that is generating interest in the community by becoming involved in the AIFA Advisory Board. We would appreciate your financial, legal, marketing, managerial or fundraising experience to help build our team.
We are also calling for prizes to be donated for the inaugural AIFA fundraising dinner on the Gold Coast on 15th September. A weekend in a beach house, boat ride, piece of art languishing in the attic or wine gathering dust in the cellar could help raise money directly for allergy and immunology research. Email email@example.com if you are willing to help.
Friday 8th April, 6.30pm: IDFA Annual Gala Ball, Taylors Lakes, VIC
Friday 29th April 2016, 7pm: SPARCle Ball, Doltone House, Pyrmont, Sydney, NSW
4th-10th April World Allergy Week
22nd-28th April World PID Week
Allergy and Immunology Foundation of Australasia (AIFA)
Suite 238, 117 Old Pittwater Road, Brookvale NSW 2100
PO Box 450 Balgowlah NSW 2093 Australia
Registered as a charity ABN: 45 615 521 452
All donations are tax deductible
AIFA aims to improve the health of people with allergy and other immune diseases by funding medical research
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